See also our related blog for the Pediatric Preclinical Testing Initiative.
Showing posts with label activities for fun. Show all posts
Showing posts with label activities for fun. Show all posts

Saturday, December 6, 2014

The Art of Survivorship


This month the collection, "Mother & Son: The Art of a Mom’s Journey through Childhood Cancer with Her Son" will be on display at Tiny’s Coffee 1412 SE 12th Portland, Oregon.  The artist, April, is an advocate for childhood cancer survivorship, her son now thriving after a challenging period with sarcoma.  The mixed media of paint-on-radiograph is accompanied by the history, from a mother's perspective, of the experience.  

Friday, August 29, 2014

2014 Rhabdomyosarcoma Pico-course

It was an exciting week for the participants of the 2014 Rhabdomyosarcoma Pico-course.  The
goal was to evaluate progress 2000-2014 in cooperative group clinical trials of new agents for rhabdomyosarcoma.  The students concluded that in such trials >525 patients had been planned, at a potential overall cost well exceeding $4.7M (not counting the expense of the drugs themselves).  Many of the results of these clinical trials are still pending.  That said, this was a very hardworking group of students who really came together for a high-level project and did a terrific job.  

Saturday, February 22, 2014

Our thanks to the Trey Foote Foundation

We are grateful to the family, board and community supporters of the Trey Foote Foundation for the fundraiser and osteosarcoma awareness event last night at the Fort Vancouver Reserve.  This remarkable evening was organized over 9 months by the students of the International Air and Hospitality Academy (special thanks to Tim Kossow).  This event was both seamless and fun, and we can't thank enough the generous attendees to making the night such a success.    
 
for the Doenbecher - Trey Foote Foundation blog, click here.

Friday, January 31, 2014

Nanocourse publication

Congratulations to the 2012 Participants of the OHSU Pediatric Cancer Nanocourse whose peer-reviewed commentary, "A Diffuse Intrinsic Pontine Glioma Roadmap: Guiding Research Toward a Cure" is published in the journal, Pediatric Blood & Cancer.  
  
It should be emphasized that this scholarly work is that of members of the community: parents, survivors and students.  We are grateful to have been able to work with this talented and insightful group of individuals.  

Saturday, January 11, 2014

Lemon Ball!

On Saturday Jan 10th was the Alex's Lemonade Stand "Lemon Ball". What a fabulous event, and a terrific community of supporters.  In attendance was not only Charles, but also our collaborator DR. David Langenau from MGH (fish rhabdomyosarcoma expert) and his wife, Brenna.  Dave and Brenna are pictured here.  

Sunday, September 22, 2013

Sunday, September 1, 2013

2014 Pediatric Cancer Nanocourse

This community-empowerment week course will examine critical steps to finding new treatments for pediatric cancers, specifically rhabdomyosarcoma and dipg (hepatoblastoma may be a topic as well).  The 2012 Nanocourse in Portland was widely attended by families from the U.S. and Europe.  
  
The 2014 Nanocourse will be at Stanford University in August and organized by parents (John MacIntosh; Sandy Smith).  The rhabdomyosarcoma project will be led by Andrea Eidsvik.  If you are interested in participating in the course and wish to be introduced, send a note to Charles at keller@ohsu.edu.  
  
Attendance will be limited, but this promises to be a very rewarding experience.  
  

Scott Carter Foundation 'Big Show'

The Tulsa community working in the memory of young Scott Carter to further childhood cancer research had it's 'Big Show' and Golf Tournament this past week.  From our lab, Noah (a 2014 Scott Carter Fellow) attended... here pictured participating in the Duke University Improv group performance at the Big Show.  Thank you, Mike, Paula, Paul and Cason for your untiring efforts!

Friday, July 12, 2013

new update on the crowdfunding project!

Please click below to see the full video update of our Consano crowdfunding project.  To contribute, go to https://www.consano.org/projects/21-halting-tumor-cells-from-spreading-by-blocking-hostile-mergers.    
 

 
Thank you for your support.  We really enjoy this partnership with the community to further new treatment discoveries for rhabdomyosarcoma. ... to succeed, we really need your help! 

Tuesday, June 11, 2013

Lemonade Days!

To see a Portland family's lemonade stand for childhood cancer research, click here for the story and video. 

Saturday, March 30, 2013

visiting Bernard at CSU


This week included a visit to our collaborator Dr. Bernard Seguin at Colorado State University's Flint Animal Cancer Center.  The faculty and staff of this outstanding program are truly inspiring.  Thanks to Lynda, who gave a warm Colorado welcome and clothed our key lab members with CSU T-shirts :) 
  
Stay tuned for an exciting multi-institutional collaboration...

Tuesday, October 23, 2012

Patient Wall: our thanks to many

We are grateful to all the families across the world that contributed to the laboratory patient wall at OHSU.  These families, touched by cancer, remind us not only of why innovation and time are of the essence, but also that cancer does not define these families, and there is childhood to return to once cancer is a uniformly curable condition.

The generous employees of Planar made possible the digital presentations of more than 300 family pictures.  Most of the credit in designing and implementing the wall goes to lab member, Jen Alabran, whose scientific expertise is matched only by her compassion for children with cancer.

We look forward to the day of Giving Back Childhood to all children touched by cancer.

[additional photos will be accepted on a continuing basis for families wishing to share their photos and stories. contact Charles via keller(at)ohsu.edu ]

 

Thursday, October 11, 2012

DragonSlayer Portland 2012


Our team name at the Northwest Sarcoma Foundation "DragonSlayer" event this year was the Sarcoma Smashers.  This was the biggest DragonSlayer event Portland has ever seen. 658 participants whose efforts helped us raise $30,000 for sarcoma research!  Check out our flickr link with all of the event photos.  To view photos of the event click here as well as here.  

Sunday, August 19, 2012

Scott Carter Foundation BIG SHOW!

It was a pleasure to attend the Scott Carter Foundation Big Show! this weekend.  The SCF raises funds to support the training of new scientists for childhood cancer research.  It's inspiring to see a community rally around an idea created by a boy, Scott, who saw a world with cures for all children affected by cancer.

Monday, August 13, 2012

Pediatric Cancer Nanocourse 2012

We are grateful and inspired by the 12 participants that came to Portland for the one-week Pediatric Cancer Nanocourse.  The goal was to create science‐informed liaisons between childhood cancer researchers and the community in order to empower the public to drive the cure of rare cancers. We firmly believe liaisons like these dedicated individuals, many of whom experienced unthinkable loss, are needed to speed the development of new and effective childhood cancer treatments.  We welcome the opportunity to work together with these individuals and the community in this shared mission.

[ update 1/31/2014:  see details of the 2012 Nanocourse peer-reviewed publication. ]

Sunday, February 19, 2012

VIP Visitor !

We had a VIP visitor on Friday, Josh.  Josh's life has by chance been touched by Ewing's sarcoma and he is now a survivor.  Josh told his story in his own words for our StoryCorp project with the Northwest Sarcoma Foundation:  to hear his interview, or his mother April's perspective via her interview, click here.  
   


We appreciate patients stopping by the lab, and the accountability that this brings.  Josh's Dad gives the universal perspective, "Every parent around the world wants one simple thing…to see their kids grow up."  It's our intention to find those new treatments that Give Back Childhood.
  
[ update 07/03/2012:  See Josh's martial arts talent and broader story here. ] 
  
[ For the StoryCorps interviews with Josh and his mom, go here. ]

Friday, October 21, 2011

The Wayman Tisdale Story (osteosarcoma,basketball & jazz)

 

Reposted from the Scott Carter Foundation website as written by Amanda
 
Hollywood is coming to Holland Hall! On Saturday, October 29, 2011 the world wide movie premiere of the “The Wayman Tisdale Story” will take place at the Walter Arts Center at Holland Hall. The film celebrates the life and legacy of three time All-American, Gold Medal Olympian, NBA Star, World Renowned Jazz musician and Tulsan, Wayman Tisdale. The event is free and open to the public.
 
The Wayman Tisdale Story” features never before seen interviews with Wayman Tisdale as he tells his own life story from childhood to his battle with Cancer. The film also features interviews with Michael Jordan, Sam Perkins, Toby Keith, Marcus Miller, Dave Koz, A.C. Green, Jonathan Butler, Steve McKeever, Billy Tubbs and the Tisdale family. Emmy nominated documentary director Brian Schodorf produced and directed the film and will be speaking at the premiere. The Los Angeles Times says “The Wayman Tisdale Story is a must-see film for all audiences.” View the trailer here.
 
The Scott Carter Foundation is excited to join forces with filmmaker Brian Schodorf to host the first public screening of “The Wayman Tisdale Story“. The event will be just like a Hollywood premiere–complete with a red carpet, photo ops, and the viewing of the hour long documentary. “The Wayman Tisdale Story” has been featured in multiple film festivals and has won numerous awards. It also features the song “Cryin’ for Me” which was written and performed as a tribute to Tisdale by Toby Keith.
 
Wayman Tisdale passed away in 2009 after a two-year battle with Cancer. He suffered from Osteosarcoma, a rare bone cancer, that also took the life of Tulsan, Scott Carter at age 13 in 1993. According to the American Cancer Society, each year about 800 new cases of Osteosarcoma are diagnosed in the United States. About 400 of these are in children and teens. Osteosarcoma is not a common Cancer and more research is needed. To date, the Scott Carter Foundation has raised $1.7 million for Children’s Cancer research. Read more about the Foundation here.  “The Wayman Tisdale Story” premiere will take place at 7:30pm on Saturday, October 29 at the Walter Arts Center at Holland Hall, located at 5666 East 81st Street (Tulsa, Oklahoma). Doors open at 6:30pm. The event is free and open to the public. The Tisdale family, Director Brian Schodorf and the Carter family will be available for interviews. A copy of the movie is available upon request.
  

now available from e-bookstands: The Miles Levin Story

reposted from levinstory.com
  
Miles Levin, a gifted but unfocused teenager from suburban Detroit – whiling away hours on videogames – is jolted by a diagnosis of a deadly cancer. Working out his feelings in writing on a blog, his charm, humor, spirit, and unceasing honesty drew the attention of readers from around the world. You - as have tens of thousands of others - will be amazed, humbled, and helped by what he wrote as he struggled with the hardships destiny imposed on him. Bob Woodruff, ABC news journalist, said of Miles, “He has told us what it means to live life without fear, but with Joy.”
While most of Miles’ days were challenging, some were filled with the happiness every teenager hopes to have – the thrill of first love, the fun of prom night, and the caring and admiration of friends. Cancer was bringing an end to his life, but he brought completion to his life. In so doing he inspires us to be mindful, loving, joyful, and thankful. He left us an enduring gift, thereby fulfilling his greatest desire when he wrote: “Dying is not what scares me; it’s dying having had no impact.” 
  
The link to the e-bookstands wesbite for this book is here

Sunday, August 28, 2011

Scott Carter Foundation Big Show!

Last night in Tulsa was the Scott Carter Foundation Big Show! that precedes the annual golf tournament fundraiser.  Scott was a young boy who had osteosarcoma, but without regard for himself he was passionate that other children like his friend Addie should have better available treatments.  He created an effort to raise money for childhood cancer research, and in his memory Scott's family and community annually raise funds that support the training of new research scientists, which have included Charles more than a decade ago, as well as our own lab's recent graduates: Koichi Nishijo, Jinu Abraham and Nicolle Hofmann.  We are grateful to the Scott Carter Foundation for their support of our trainees and our research on sarcomas, including osteosarcoma.
 
[ right, John Grant mc'g the auction; left, Charles and Paul 'Ole Dad' Compton, Scott's grandfather. ]
 


Monday, July 11, 2011

Schmidt Laboratory Retreat

It was a pleasure to spend the past few days with liver biologist and fellow Capecchi lab alumnist, Ed Schmidt, and his lab, colleagues and family for a backcountry Montana retreat (hiking and camping trip, complete with pack donkeys).  And yes, when scientists go camping we do talk a lot of science :) but the kids also get a special set of 'guides' to nature.